What is neurofibromatosis?

Neurofibromatosis, more commonly known as "NF' is a rare genetic disorder. 

There are three types of NF. 

-NF1 which is the most common form effecting 1 in every 3,000 people. 

-NF2 related schwannomatosis, which effects 1 in every 25,000 people. 

-Schwannomatosis which effects 1 in every 40,000 people. 

While the science and manifestation of NF  as well as the issues it causes patients does vary from one form to another, the common factor is the growth of additional cells in the form of tumors. 

NF2 patients like myself will experience a wide range of neurological issues due to the growth of these tumors such as hearing loss, loss of facial function, balance issues, vision impairments and many others. 

NF can be genetically passed down or may occur due to spontaneous genetic mutation, which is known as Mosaic NF. 

For more information on the science and specifics of NF please visit ctf.org.